The Huntington's Disease Association (HDA) is the leading UK charity supporting anyone affected by Huntington's disease. We offer information, advice, and emotional support for individuals, families, carers, and professionals at every stage of the Huntington's journey.
Our Specialist Huntington's Disease Advisers provide guidance on living with Huntington's, genetic testing, caring for loved ones, and managing symptoms. We support children, young people, and adults, and offer resources for those newly diagnosed, at risk, or caring for someone with the condition.
- Helpline: Speak to our team for confidential advice and support.
- Monthly webinars: Join 'Finding your way with Huntington's disease' sessions for practical tips and peer support.
- Support groups: Connect with others through local branches and online groups.
- Resources: Access guides, leaflets, videos, and webinars tailored for families and professionals.
- Training for professionals: We educate health and social care professionals to improve care for those affected.
- Youth engagement service: Dedicated support for children and young people impacted by Huntington's in their family.
We are here for you whether you are newly diagnosed, caring for someone, or seeking information as a professional. All services are free and available across England and Wales.
Contact us by phone, email, or post for advice, support, or to request printed resources. You can also find your nearest support group or join our events and fundraising activities.
Opening hours: Monday to Friday, 9am–5pm.