The Ehlers-Danlos Syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility.
Joint hypermobility means that a person’s joints have a greater range of motion than is expected or usual. Some people have joint hypermobility that does not cause them pain or other issues. However, some people with joint hypermobility also have joint instability. Joint instability occurs when the bones of a joint aren’t held in place securely. This can lead to joint subluxations, dislocations, sprains, and other injuries. Joint instability can cause both acute and chronic pain and interfere with daily life.
The Ehlers-Danlos Society’s mission is to spread awareness and knowledge of types of EDS and HSD, educate medical professionals, and foster and fund research. Contacting the Helpline implies an understanding that it is not a substitute for medical advice and/or care by a medical professional. We will do our best to respond within 48 business hours.
Would you like to speak to others living with EDS and HSD but can’t get to any support group meetings, events, or conferences? Our weekly, monthly, and quarterly Let’s Chat virtual support groups are for people from all over the world and are a chance to come and share your story and chat with others for support.