The Huntington's Disease Association London branch offers compassionate support, advice, and information for anyone affected by Huntington's disease in London. Whether you are living with Huntington's, at risk, a carer, family member, or friend, our team is here to help at every stage of your journey.
What we offer:
- Peer support and regular informal meetings, usually over tea or coffee, to share experiences and advice.
- Access to Specialist Huntington's Disease Advisers who provide expert care management, emotional support, and advocacy.
- Support for children and young people through our Youth Engagement Service (HDYES).
- Information resources on symptoms, care, and management.
- Help communicating with medical, health, and social care professionals.
- Local support networks and carers’ group meetings.
- Social events such as picnics and garden parties.
- Family days with guest speakers, including researchers and dieticians.
Where we meet:
- Highbury – Arsenal FC Community Hub or a local cafe
- Uxbridge – Hillingdon Carers Office, Uxbridge High Street
- East London – Multiple locations
Meetings are held at different venues across London, mainly north of the River Thames, but anyone from across London is welcome. For details on upcoming meetings and venues, please contact londonhdabranch@gmail.com.
Who can access: Anyone affected by Huntington's disease, including family, carers, friends, and professionals. All ages welcome.
Cost: All support and advice are provided free of charge.
How to get started: Contact the branch by email or phone, or reach out to our Specialist Adviser for London, Anna Holmes.
Affected by Huntington's disease