"Do you have a diagnosis of Young Onset Dementia?
Are you passionate about utilising your experiences to influence meaningful and positive change? Join the Alzheimer’s Society’s Young Dementia Thematic Group today.
Young onset dementia often presents with unique difficulties and challenges. Our group provides a space to share your views, experiences and ideas, to help make meaningful and positive changes within the Alzheimer’s Society and beyond.
Our aims are to Empower - Influence - Educate – Inspire
“Being a part of this group has helped to change my life post-diagnosis. There is a point to my life, I can still make a difference. My intellect isn’t as damaged as I had thought.”
The Young Dementia Thematic Group is a National Alzheimer’s Society group dedicated to individuals living with a diagnosis of young onset dementia. This includes people who may be over the age of 65, but were diagnosed before.
The group is often described by others living with a diagnosis as a safe place where they can talk to one another and know that they truly understand.
The group focusses on offering opportunities to people affected by dementia to use their personal views, experiences and ideas to help shape the work that the Alzheimer's Society and its partners do. The difficulties and obstacles faced by those living with a diagnosis of young onset vary hugely and are entirely unique- the group recognises this and intends to utilise this to help local and national services better understand how to make positive changes and a real difference. The group also offers elements of peer support in a warm and welcoming environment.
In a nutshell, the group offers people affected by a diagnosis of Young Onset a voice to help make positive and tangible changes across the UK whilst forming new relationships and friendships.
The group currently meets twice monthly via Zoom, usually on a Thursday from 2-3.30pm.
A diagnosis of young onset dementia, diagnosed before the age of 65
Sessions take place virtually via Zoom.
“Involvement is my way of trying to make it right for others. It helps me to keep moving. When I’m asked back time and time again it makes me feel valued. It gives me a purpose to get out of bed in the morning".
"Being a part of this group has helped to change my life post-diagnosis. There is a point to my life, I can still make a difference. My intellect isn’t as damaged as I had thought".